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Volunteer's Voice

It's such a simple thing to do For Rose Weidner, the pain of fibromyalgia comes and goes. "For periods of time, I feel fine," Weidner explains. "And then when the pain comes, it can be a raging flare-up." The 54-year-old from Columbia, Md., has learned to live with pain, as she has tried several different treatment options with intermittent success. When her doctor suggested she consider volunteering for a clinical research study to test a new drug for fibromyalgia, Weidner agreed. Because her sister is a researcher, Weidner understands how such studies are done, but she had never personally participated in one before. She had her share of questions before she made her final decision.

"I didn't seek out a research study, but when my doctor contacted me, I wanted to learn more," Weidner says. "The study was very well explained to me- the entire method and all the possible side effects. All my questions were answered, and I knew I was able to end my participation at any time if I wanted to." Weidner has experienced some relief from her pain since she started participating in her clinical research study in January. She had a few side effects initially that she describes as "annoying more than anything else," but says the benefits outweigh them. And she is committed to remaining in the one-year study. "It's really important to volunteer," Weidner says. "It's such a simple thing for me to do. It's not just for my benefit, but for the general benefit it can bring to others."


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